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Caregivers Guide

A Guide for Family Caregivers of Older New Jersey Residents

Section 1 - Psychological Aspects of Caregiving

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1.1 The Care-Receiver

Does a person's core personality significantly change with advancing age? Do older people become more rigid or set in their ways? Do they lose their intellectual ability and curiosity, becoming senile in the process? Do they lose interest in the outside world and become more selfish? Do their sensitivities and positive attributes as parents and spouses erode with time, leaving a cantankerous, impatient and irritable older person to deal with? Scientists have discovered that an individual's personality and character do not significantly change with the passage of time and remain surprisingly consistent from adulthood into old age. The habitual way in which people deal with life and its challenges remains the same throughout life.

Scientists also found that some things about the person can change. For instance, advancing age may result in the loss of some energy, psychic as well as physical, forcing people to slow down when performing tasks. Interestingly too, scientists found that elderly men become more caring, emotionally expressive and less authoritative. Women tend to become slightly more self-assertive.

Research has also revealed that, even in old age, individual differences remain. For example, some retirees need to stay active in order to rechannel the energies they used formerly on work or other role­obligations. Others, however, accept the leisure and freedom that retirement brings with great equanimity and enjoyment.

Scientists believe that, as people grow older, it is important for them to remain "bonded" to other human beings, preferably family members or friends who act as their confidants. Older women seem to have a greater need to bond than older men, who often substitute work or recreation for interpersonal relationships. It has also been observed that loneliness or living alone without a support network of friends or relatives is extremely stressful for elderly individuals. Research has shown that being married or living with others typically promotes greater life satisfaction; strengthens one's ability to cope with stress; and helps prevent persons from falling victim to substance abuse and even illness. Keep in mind that, no matter what age they are, people cannot be uniformly stereotyped.

What has just been said does not imply that an aging individual's personality cannot or will not change with time. It does mean that a well person, not afflicted by age-associated disability and disease, will maintain a high degree of behavioral consistency and continuity when progressing from middle adulthood into the more advanced years of life. However, debilitating illness, such as Alzheimer's disease, not only affects its victim's cognitive and intellectual abilities, but can also frequently strip away the person's finer character attributes, particularly in the terminal stages of the disease. Moreover, elderly who suffer simultaneous disabilities and disorders frequently receive a variety of medications that can have a markedly disorganizing impact upon their thinking and behavior. Under these distinctly pathogenic life circumstances, the elderly individual becomes a dependent care-receiver. The need for effective and compassionate care becomes evident, especially to those living in the same household.

Much has been written about how the help and support of families, friends, neighbors and formal care providers have helped elderly individuals to: cope more effectively with the stresses of illness or disability; enhance their feelings of self-worth and value; comply with prescribed medical regimen, and where applicable, make a speedy recovery from illness or disease. Although these findings are generally true, they do, however, mask a much more complicated pattern of interaction between caregiver and care-receiver, which can contain instances of negative elements. To be an effective caregiver, a person must be aware of these negative aspects.

First it should be understood that in being old and ill or disabled, the individual adopts a social role which is not typical in our society. Adults, in particular, are expected to be independent and self-reliant. To be otherwise implies a regression to a lower functioning level which may have a distinctly negative impact upon the ill person's sense of self-worth. Older persons are known to be fiercely self-reliant to the extent that this trait is recognized as a major impediment to their seeking help. Falling ill and becoming dependent - situations which, under practically all circumstances carry a negative label - can be traumatic for the elderly. The problem is further exacerbated by people who confront their sick or disabled elderly with an unexpressed conviction that these persons have somehow merited their fate, either through careless behavior or because of some undesirable personal characteristic. We are reluctant to admit that suffering and disease are randomly distributed throughout humankind, and that all of us are potential care receivers. Within every caregiver, negative views of the care-recipient may coexist with feelings of compassion. This is especially true if the care-receiver's condition is long-term and not expected to improve. As the adult becomes more dependent and less self-reliant, the caregiver may feel more and more helpless, resentful, and frustrated with the increased responsibility.

Many people expect a grateful response to their caregiving. Instead, the care-receiver may respond with the negative feelings of tension, hostility, and decreased self-esteem, and may even belittle the helper and the help. Just as the caregiver may often feel negatively towards the care-receiver, so may the care-receiver respond negatively toward the caregiver. Like all people, the elderly appreciate their freedom and independence and when these values are threatened they will react with anger and try to reassert themselves. This may be reinforced when caring carries mixed messages. On the one hand, the recipient feels affirmed; on the other hand, devalued.

Research shows that persons with high self-esteem will not accept help as willingly as persons with low self-esteem. The reason for this is clear. Receiving and accepting help carries the suggestion of having failed, which is an upsetting experience to an individual.

One way to avoid this situation is to allow the care-receiver to pay back the caregiver with some kind of favor. For gravely ill or debilitated persons, this tradeoff may not always be possible. The truly, sensitive caregiver will create an opportunity for the care-receiver to reciprocate, no matter how feeble the gesture. This act is invaluable to the recipient's sense of dignity and selfworth and helps maintain a meaningful interaction.

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