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We hope the following Internet links are useful as you investigate
caregiver resources:
Disclaimer for
hyperlinked Internet sites
By clicking on one of these hyperlinked sites, you are leaving
the NJ Department of Health and Senior Services Internet site and
entering an external link. NJDHSS cannot attest to the accuracy
of information provided by linked sites and does not recommend
any specific commercial agencies, companies or individuals doing
business over the Internet or through online services, such as
those listed among these resources. The inclusion of the sites
within this guide is for informational purposes only, as their
aging-related content warrants their inclusion. Linking does not
constitute endorsement by NJDHSS or any of its employees.
This section contains approximately 100 links to information regarding
care and services that may be helpful to the caregiver and the elderly
or disabled person for whom care is being provided. The links are
organized alphabetically to correspond with the organization of
material in the resources section
of the website. In addition, listed alphabetically, there are general
information websites and those related to specific diseases
and disabilities.
Care Management Services
Administration on Aging (AOA)
www.aoa.gov
The AoA is the federal government agency responsible for taking
the lead in issues dealing with older Americans. This site includes
useful information such as full text of the AoA Update (newsletter),
listings of state agencies on aging and AoA regional offices, a
statistical profile of older Americans, information about the Older
Americans Act, and the National Institute on Aging 'Age Pages'.
It also features the Eldercare Locator - a toll-free information
and referral service that helps locate services and programs for
older people across the country.
National Association of Professional Geriatric Care Managers
(GCM)
www.caremanager.org
GCM is a non-profit, professional organization of practitioners
whose goal is the advancement of dignified care for the elderly
and their families. GCM is committed to maximizing the independence
and autonomy of elders while striving to ensure that the highest
quality and most cost-effective health and human services are used
when and where appropriate. Their site allows visitors to search
the nation for geriatric care managers and contains many resources
such as publications, data, and related information.
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Help with Bills and Finances
AARP Money Management Program
http://www.aarpmmp.org
This program offers daily money management service to help low-income older or disabled people who have difficulty budgeting, paying routine bills, and keeping track of financial matters.
Benefits Checkup
www.BenefitsCheckUp.org
This site help people over age 55 find programs that may pay for
some of the costs of prescription drugs, health care, utilities,
and other items and services. People may fill out a questionnaire
to find programs for which they may be eligible.
Benefit Eligibility Screening Tool
best.ssa.gov
This site provides a screening tool you can use to see if you
are eligible for Social Security, SSI, or Medicare benefits.
Centers for Medicare & Medicaid Services (CMS)
www.cms.hhs.gov
The CMS website provides an overview of Medicare and Medicaid policy,
research on healthcare, health care statistics, and access to health
care laws and regulations. Along with providing full texts of many
CMS publications and manuals, it also offers basic consumer literature
about health related services, announcements and a telephone directory
of central office staff.
Financial Caregiving: a Survival Guide
www.fdic.gov/consumers/consumer/news/cnsum97/fincare.html
FDIC Consumer News - Summer 1997edition provides an excellent article
on financial issues surrounding caregiving.
FirstGov for Seniors
www.firstgov.gov/Topics/Seniors.shtml
This is an incredible site that links you to all federal agencies,
state websites, and organizations under such headings as “health”,
“education”, “tax assistance”, etc. This
may be the only website you need to know to get to all the ones
you will see below and many, many more.
HealthNow
www.umd.nycpic.com/beneinfo.html
This is the site for HealthNow, the Durable Medical Equipment
Regional Carrier for the region including New Jersey. You may look
at and download the participating supplier directory. The site includes
Local Medical Review Policy.
Social Security Administration Online
www.ssa.gov
This is the site for the Social Security Administration. You can
get help from benefit planners to estimate future Social Security
retirement benefits, include a quick calculator. You can apply for
a replacement Medicare card and for retirement benefits.
US Department of Labor
www.dol.gov
This is the U.S. Department of Labor site where you can get information
about COBRA, ERISA, Black Lung Benefits Act, OSHA, to name just
a few.
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Help with Insurance
Benefit Eligibility Screening Tool
best.ssa.gov
This site provides a screening tool you can use to see if you
are eligible for Social Security, SSI, or Medicare benefits.
Benefits Checkup
www.BenefitsCheckUp.org
This site help people over age 55 find programs that may pay for
some of the costs of prescription drugs, health care, utilities,
and other items and services. People may fill out a questionnaire
to find programs for which they may be eligible
Centers for Medicare & Medicaid Services
www.cms.hhs.gov
This is the official website for the Centers for Medicare &
Medicaid Services, the federal agency that administers Medicare
and Medicaid nationally. There are links to the websites for Medicare,
Medicaid, the Childrens Health Ins. Plan, HIPAA, etc. You can get
information about the laws and regulations governing Medicare and
Medicaid, and official policy memorandums concerning Medicare coverage.
A Public Affairs link lets you see the press releases concerning
Medicare and Medicaid over the last several years.
Department of Veterans Affairs
www.va.gov
This is the site for the U.S. Department of Veterans Affairs.
National Government Services
www.ngsmedicare.com
This is the site for Empire Medicare Services. You can look at
or download the MEDPARD (list of doctors, by county, who have signed
the Medicare Participation Agreement) and other publications. The
site includes Local Medical Review Policy.
Federal Employees Insurance Program
www.opm.gov/insure/
This site provides federal employees/retirees information about
their benefits.
Medicaid Database – Kaiser Family
Foundation
www.kff.org/medicaidbenefits
The Kaiser Family Foundation has introduced an online database,
with information on Medicaid benefits in the 50 states, DC, and
the U.S. territories. Information provided is comprehensive, with
information about benefits covered by each state, for what populations
the benefits are available, and the limitations, co-payments and
payment rules that apply to the benefits. The database is searchable
by Medicaid benefit as well as by state.
Medicare – Official Governmental Site
www.medicare.gov
This is the official Medicare website where you can read about
Medicare coverage information and frequently asked Medicare questions
You can look at or download Medicare publications. Medigap Compare,
Medicare + Choice Compare, Nursing Home Compare allow you to look
at the companies selling Medicare supplements in your state, the
HMO and POS plans available in your county, and the nursing homes
in your area/state. Search tools are at the site to get information
about dialysis facilities, participating physicians and suppliers,
and other health websites.
National Association of Insurance Commissioners (NAIC)
www.naic.org
The NAIC consists of the chief insurance regulators in all 50 states
and territories. Their primary responsibility is to protect the
interests of insurance consumers. Their guide "A Shopper's
Guide to Long-Term Care Insurance" is an excellent resource
that can help educate consumers.
National Clearinghouse for Long-Term Care Information
www.longtermcare.gov
The U.S. Department of Health and Human Services (HHS) has launched this website to make it easier for consumers to get the information they need to plan for long-term care. The site provides comprehensive information about long-term care planning, services and financing options, along with tools to help people begin the planning process.
Railroad Retirement Board
www.rrb.gov
This is the site for Railroad Retirement Benefits.
State Health Insurance Program of New Jersey
www.state.nj.us/health/senior/ship.htm
This is the site for the SHIP in New Jersey. It includes the Medicare
supplement, Medicare + Choice HMO and Point-of-Service plan comparison
charts. Your clients can view the charts at this site. It also provides
the SHIP telephone number for each county.
US Department of Labor
www.dol.gov
This is the U.S. Department of Labor site where you can get information
about COBRA, ERISA, Black Lung Benefits Act, OSHA, to name just
a few.
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Grandparents and Relatives Caring
for Children
AARP Grandparent Information Center
www.aarp.org/families/grandparents/
This site offers information and referral to other
resources that help grandparents raising grandchildren
GrandsPlace
www.grandsplace.com
This site offers information concerning grandparent
rights issues, a resource guide to grandparent support groups,
and interactive bulletin boards for grandparents questions and
use.
Raising Your Grandchildren
www.raisingyourgrandchildren.com
This website is designed to help guide grandparents and kinship
caregivers in their efforts to raise these children and to find
needed resources for the children as well as themselves.
U.S. Government website:Grandparents Raising Grandchildren
www.firstgov.gov/Topics/Grandparents.shtml
FirstGov is the official website of the US Government.
This website links to benefits and assistance information, health
and safety resources, reports and publications, and state resources
for grandparent.
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Adults Living At Home
Adaptive Environments
www.adaptenv.org
This site is hosted by Adaptive Environments Center, Inc. and provides
substantial information related to environmental barriers and methods
of overcoming them for older adults and persons with disabilities.
American Foundation for the Blind (AFB)
www.afb.org
The AFB is a non-profit organization whose mission is to enable
people who are blind or visually impaired to achieve equality of
access and opportunity.
Assistive Tehcnology Advocacy Center (ATAC)
www.njpanda.org
ATAC is administered by NJ Protection and Advocacy, Inc., a group
that works to overcome barriers in the system and to make assistive
technology more accessible to individuals with disabilities throughout
the state.
Eldercare Locator
www.eldercare.gov
Eldercare Locator helps older adults and their caregivers find
local services for seniors. The U.S. Administration on Aging
is now pleased to make part of this service available on-line
so that consumers can easily link to the information and referral
(I&R) services of their state and area agencies on aging.
These I&R programs can help you identify appropriate services
in the area where you or your family member resides.
Lighthouse International
www.lighthouse.org
Lighthouse International strives to enable people of all ages
to overcome vision impairment through worldwide leadership in vision
rehabilitation services, education, research and advocacy.
Meals on Wheels of America
www.mowaa.org
If you are looking for a meal program in a community, Meals on
Wheels of America provides a comprehensive list of home delivered
meal programs and nutrition sites by state and city.
Net of Care -Information and Resources for Family Caregivers
www.NetofCare.org
The web site contains a searchable database of services offered
in New York City (Manhattan and Brooklyn, other boroughs coming
soon) and a list of national resources for dealing with the stresses
of family caregiving. It is an outstanding resource for family
caregivers of any specific illness.
New Jersey Adult Day Services Association (NJADSA)
www.njdaycenters.com
The NJADSA website will assist you in locating an Adult Day Services
facility that will meet the medical and supervisory needs of an
adult who is living in a community setting. Individual facilities
may also provide information on respite care and support groups
for caregivers.
New LifeStyles Online
www.NewLifeStyles.com
This website provides a comprehensive database of resources for
senior housing and care services. It features a fully indexed search
engine of more than 55,000 records; printed guides can also be ordered
free of charge. The site also includes a special 'social workers'
area.
National Adult Day Services Association (NADSA)
www.nadsa.org
NADSA provides a focal point for adult day services at a national
level.
National Fire Protection Association (NFPA)
www.nfpa.org
The NFPA's Center for High-Risk Outreach aims to reduce the number
of deaths and injuries among the most vulnerable groups, including
seniors. This site features a report, "Remembering When: A
New Fire and Fall Prevention Program for Older Adults" that
may be informative for those interested in fire and fall prevention
in the elderly population.
National Resource Center on Supportive Housing and Home
Modification
www.homemods.org
This website offers a wealth of information as well as practical
strategies and materials for consumers, manufacturers, suppliers,
policymakers, practitioners, and researchers to increase their awareness
about the importance of home modifications.
Rehabilitation Engineering and Assistive Technology Society
of North America (RESNA)
www.resna.org
RESNA is an interdisciplinary association of people sharing an
interest in technology and disability. They strive to improve the
potential of people with disabilities to achieve their goals through
the use of technology. This website promotes research, development,
education, advocacy, and information for the advancement of assistive
technology.
University of Buffalo - Center for Assistive Technology
www.phhp.buffalo.edu/cat/index.php
The Center for Assistive Technology at the University of Buffalo
conducts research, education and service to increase knowledge about
assistive devices for persons with disabilities. The center works
to increase the provision of research and development, education,
service provision, and information dissemination related to assistive
technology.
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Support Groups and Support Services
Aging Parents and Adult Children Together (A/PACT)
www.feddesk.com/freehandbooks/1014-4.pdf
A/PACT is a series of 10 articles produced by the Federal Trade
Commission in partnership with AARP. The series will introduce
you to eldercare issues you may confront and help you help aging
loved ones investigate options and make decisions that can help
maximize their independence, comfort and quality of life.
Care Guide
www.careguide.com
This website is an excellent resource for both child care and elder
care concerns. It offers caregivers help by making available an
extensive service provider directory through a nationwide search
engine, as well as numerous articles, newsletters, and much more.
Caring Road
www.caringroad.org
This Web site helps caregivers prepare for what lies ahead, recognizing
their options in a timely way so they can find support, locate needed
services and make informed decisions about the care of their loved
ones. You don't need a password to enter the site, everything is
free and you will not be put on any mailing lists.
Eldercare Online: The Internet Community of Elder Caregivers
www.ec-online.net
This website provides comprehensive information, education and support
for people caring for aging loved ones. It has a library of articles,
educational materials, and online support groups for caregivers.
GriefNet
www.griefnet.org
GriefNet facilitates 50 e-mail support groups covering such topics as loss of a parent, spouse/partner, sibling or friend.
NJ Self-Help Group Clearinghouse
www.selfhelpgroups.org
The NJ Self-Help Group Clearinghouse, through its toll-free helpline at 1-800-367-6274, provides contacts for over 4,500 local self-help groups in New Jersey. It also helps those interested in joining with others to start new self-help groups.
Respite Services Guide
aging.utah.edu/gerontology/RespiteBooklet.pdf
This guide has been published by the University of Utah's Center on Aging to provide a broad overview of caregiver respite services.
Well Spouse Foundation
www.wellspouse.org/
The Well Spouse Foundation is a national, not for profit membership
organization which gives support to wives, husbands, and partners
of the chronically ill and/or disabled.
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Adults
Who Do Not Live at Home or Need Alternatives to Living at Home
American Association of Homes and Services for the Aging
(AAHSA)
www2.aahsa.org
AAHSA represents not-for-profit organizations dedicated to providing
high-quality health care, housing and services to the nation's
elderly.
Assisted Living Federation of America (ALFA)
www.alfa.org
ALFA is the only trade association exclusively devoted to the assisted
living industry and the population it serves. Membership includes
assisted living providers, as well as a diverse range of industry
partners and supportive organizations. This site provides information
for consumers, researchers, and others interested in assisted living.
Consumer Consortium on Assisted Living (CCAL)
www.ccal.org
CCAL is a non-profit, national organization which represents the
needs of consumers, professionals, and the general public regarding
assisted living issues.
Dept. of Housing and Urban Development, Information for People with Disabilities
www.hud.gov/groups/disabilities.cfm
This site has information on housing for people with disabilities.
Dept. of Housing and Urban Development, Information for Senior Citizens
www.hud.gov/groups/seniors.cfm
This site provides comprehensive information on housing issues and
programs for older adults.
Disability Resources
www.disabilityresources.org/NEW-JERSEY.html
Disability Resources, Inc. is a nonprofit organization that provides
information about resources for independent living and has information
specific to the State of New Jersey.
Long Term Care Living
www.longtermcareliving.com
Long Term Care Living is a guide to planning, preparing, and paying
for long term care. The site is sponsored by the American
Health Care Association and the National
Center for Assisted Living.
Mental Health Association in New Jersey
www.mhanj.org
The Mental Health Association is dedicated to improving the mental
health of all people in New Jersey and to achieving victory over
all types of mental illness through advocacy, education and support
services.
New Jersey Presbyterian Homes and Services, Inc.
(PHS)
www.phsseniorliving.com
PHS is a not-for-profit organization dedicated to providing high-quality
health care, housing and services to NJ's elderly. Their website
allows consumers seeking retirement options with regards to housing
and services to learn more about their communities throughout New
Jersey.
Nursing Home Compare
www.medicare.gov/NHCompare
Users will be able to search for nursing homes
by State, County, City, Zip Code or Name. In addition, they will
be able to get maps and directions for the nursing homes they select.
Senior Sites
www.seniorsites.com
Senior Sites provides a reference guide that familiarizes consumers
with the various levels of care in housing and services, a full-text
searchable listing of nonprofit providers from across the country,
and a list of the national and state organizations representing
nonprofit providers
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Legal/Regulatory Services
American Bar Association (ABA)
www.abanet.org
The ABA provides law school accreditation, continuing legal education,
information about the law, programs to assist lawyers and judges
in their work, and initiatives to improve the legal system for the
public.
ABA Commission on Law and Aging
www.abanet.org/aging
This site contains information on legal issues and aging.
American Society of Law, Medicine and Ethics
www.aslme.org
This site provides you with educational information at the on
law, medicine, and ethics.
Ethical Wills - Preserving Your Legacy of Values
www.ethicalwill.com
Ethical wills are a way to share your values, beliefs, life lessons,
hopes for the future, love, and forgiveness with your family and
community. This site has information on creating an ethical will.
Federation of State Medical Boards
www.docinfo.org
This site has a database containing disciplinary actions taken
against doctors by state medical boards dating back to the early
1960s. For a fee ($9.95) and the name and address of the doctor,
you can see if any disciplinary actions have been brought against
the doctor you’re considering.
Health Grades
www.healthgrades.com
Health Grades is a healthcare quality ratings, information and
advisory services company. You may find hospitals, physicians, nursing
homes, home health agencies, and other provider directories (Assisted
Living, acupuncturists, naturopaths, cancer centers, birth centers,
chiropractors) by state and zip code. You may purchase report cards
for the health care providers you are interested in. You will have
to pay $24.95 for 3 reports, and $5.95 for each report thereafter.
Healthcare Quality Strategies, Inc. (HQSI)
www.hqsi.org
Healthcare Quality Strategies, Inc. (HQSI) monitors the quality of care Medicare patients receive from doctors, hospitals, home health agencies and nursing homes. They may be contacted by calling 1-800-624-4557.
Patient Advocate Foundation
www.patientadvocate.org
This national non-profit organization serves as an active liaison
between the patient and his/her insurer, employer and/or creditors
to resolve insurance, job discrimination and/or debt crisis matters
relative to their diagnosis through case managers, doctors and attorneys.
Pharmacy Checker.Com
www.pharmacychecker.com
This site collects, evaluates, and reports credentials, prices,
and customer feedback regarding online pharmacies. You can compare
prices of products offered by online pharmacies. It rates online
pharmacies, determines if they are licensed or not, and if the sites
maintain security of your financial and personal information. For
example, this organization determined that 50% of online pharmacies
are not licensed. To obtain this information you must subscribe
to PharmacyChecker.com at $24.95/year.
United Network for Organ Sharing (UNOS)
www.unos.org
This site provides information about how to become an organ donor,
how the organ donor network works, and national resources relating
to organ donation.
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General Information Links
Access America for Seniors
www.seniors.gov
This site was developed as an inter-agency cooperative effort,
under the leadership of the National Partnership for Reinventing
Government, with the participation of numerous public and private
organizations. It was designed to provide senior citizens, and anyone
who works on their behalf, with one site where they can access government
services and information.
Administration on Aging Website Resources
www.aoa.dhhs.gov/eldfam/More/More.asp
The AoA has developed a central source for links to key websites
on areas of interest in aging. There are numerous sets of links
in several key areas (grouped by subject matter) as well as links
to other "metasites" with links to many resources in aging.
AgingCare.com
www.agingcare.com
This site provides a forum for connecting caregivers to information, resources and each other.
Agis.com
www.agis.com
This site contains a wide variety of eldercare information, including content from leading national and local caregiving organizations.
Alliance for Aging Research
www.agingresearch.org
The Alliance for Aging Research is a private, not-for-profit citizen
advocacy organization for improving the health and independence
of Americans as they age. The Alliance was founded in 1986 to promote
medical and behavioral research into the aging process by developing,
implementing and advocating programs in research, professional and
consumer health education and public policy.
American Academy of Home Care Physicians
www.aahcp.org
This website includes a state-by-state listing of doctors who make house calls.
Caregiver.com
www.caregiver.com
This site contains back issues of Today's Caregiver Magazine,
information on the "Sharing Wisdom Caregivers Conferences"
and a discussion forum.
Caregiving.com
www.caregiving.com
This site offers resources and support for family caregivers.
CarePages
www.carepages.com
CarePages are free, easy-to-use web pages hosted at this site that help family and friends communicate when a loved one is receiving care.
Caring.com
www.caring.com
This site is designed to help baby boomers who are caring for their elderly, ill parents.
CaringBridge.org
www.caringbridge.org
This nonprofit organization offers free personalized websites to help families and friends stay in touch when someone they know is ill and in need of support.
Caring for Your Parents
www.pbs.org/wgbh/caringforyourparents
This website compliments a television special that aired on PBS. The site includes an on-line Caregiver's Handbook.
CareGivingHelp.org
www.caregivinghelp.org
This site features a set of brief videos illustrating or demonstrating specific caregiving skills and issues.
Centers for Medicare & Medicaid Services (CMS)
www.cms.hhs.gov
The CMS website provides an overview of Medicare and Medicaid
policy, research on healthcare, health care statistics, and access
to health care laws and regulations. Along with providing full
texts
of many CMS publications and manuals, it also offers basic consumer
literature about health related services, announcements and a
telephone
directory of central office staff.
Consumer Product Safety Commission
www.cpsc.gov/cpscpub/pubs/older.html
This site contains publications of particular interest to older
consumers looking for information about safety.
Department of Health and Human Services (DHHS)
www.os.dhhs.gov/
The DHHS is the federal government department that administers
health care programs. This site includes considerable information
about the department and its constituent agencies - including links
to their individual sites. The site includes consumer information
and resources on policy positions, program evaluation and locating
other kinds of health care information.
DisabilityInfo.Gov
www.disabilityinfo.gov
This federal government site connects users to information and resources on a wide-range of disability-related topics, such as benefits, civil rights, community life, education, employment, health, housing, technology and transportation.
ElderCareLink
www.eldercarelink.com
This website is home to a homecare provider referral service. Use of the service is free.
Family Caregiving Extension
www.extension.org/family+caregiving
This website provides links to resources and articles of interest to caregivers.
Family Caregiving 101
www.familycaregiving101.org
"Family Caregiving: It’s not all up to you" is an outreach program created by the National Family Caregivers Association (NFCA) and the National Alliance for Caregiving (NAC). The centerpiece of the campaign is familycaregiving101.org. The site is designed to provide caregivers with the basic tools, skills and information they need to protect their own physical and mental health while they provide high quality care for their loved one.
Family Caregiver Alliance
www.caregiver.org
This site has online fact sheets, publications and support groups. The site also has an online guide to help families find government, nonprofit and private caregivers support programs nationwide.
FamiliesOfLovedOnes.com
www.familiesoflovedones.com
This site is the on-line version of a free magazine for caregivers.
FirstGov for Seniors
www.firstgov.gov/Topics/Seniors.shtml
This is an incredible site that links you to all federal agencies,
state websites, and organizations under such headings as “health”,
“education”, “tax assistance”, etc. This
may be the only website you need to know to get to all the ones
you will see below and many, many more.
FedStats
www.fedstats.gov/
This site provides access to statistics from more than 100 federal
agencies, as well as statistical data by topic.
Full Circle of Care
www.fullcirclecare.org
This site is intended to help family caregivers plan and make informed
choices. In addition to providing general information and helpful
tips, the site offers links to health, senior and caregiver websites
for all 50 states.
Growth House
www.growthhouse.org
This is a starting point for information on the whole
spectrum of issues related to the end of life for people of all
backgrounds.
Handbook for Family Caregivers
www.caregiver.org/caregiver/jsp/content/pdfs/op_2003_long_distance_handbook.pdf
This booklet, made available by the Family Caregiver Alliance,
serves as a roadmap for families new to the challenges of caring
from afar. It takes a step-by-step approach to assessing the care
situation, developing a care team, holding a family meeting, accessing
community services, and balancing work and caregiving responsibilities.
The handbook is available for free download at http://www.caregiver.org
and also available in print by sending $5.00 to Family Caregiver
Alliance, 690 Market St., Ste. 600, San Francisco, CA 94104.
Health Grades
www.healthgrades.com
Health Grades is a healthcare quality ratings, information and
advisory services company. You may find hospitals, physicians, nursing
homes, home health agencies, and other provider directories (Assisted
Living, acupuncturists, naturopaths, cancer centers, birth centers,
chiropractors) by state and zip code. You may purchase report cards
for the health care providers you are interested in. You will have
to pay $24.95 for 3 reports, and $5.95 for each report thereafter.
HealthyNJ: Information for Healthy Living
www.healthynj.org/health-wellness/caregiv/nj.htm
HealthyNJ is a product of the University Libraries at the University
of Medicine and Dentistry of New Jersey, and contains general information
and useful links to resources in-state.
Home Care Association of New Jersey
www.homecarenj.org
The Home Care Association of New Jersey is a trade group representing
organizations that provide home care services, including home health
aides, nurses and hospice care. This site includes a consumer guide
to home care and other resources.
Latino Gerontological Center
www.gerolatino.org
The Latino Gerontological Center complements the work of other
national and local Hispanic organizations who provide direct services,
and organize training for those serving Hispanic elders. They work
to educate Latino elders and their communities about their rights.
Information on this site is available in both English and Spanish.
Lotsa Helping Hands
www.lotsahelpinghands.com
This site is an easy-to-use, private group calendar, specifically designed for organizing helpers. A coordinator puts needed tasks on a calendar and helpers select those activities they will do. They then get reminders one week and one day before the task is to be completed.
National Alliance for Caregiving
www.caregiving.org
This site is a joint venture of many organizations designed to
support family and professional caregivers. Includes the Family
Caregiver Resource Connection, which reviews and rates hundreds
of books, videos, websites, magazines, fact sheets and other resources
addressing the range of issues and questions faced by family caregivers.
National Asian Women’s Health Organization
www.nawho.org
The National Asian Women's Health Organization was founded in 1993
to achieve health equity for Asian Americans. NAWHO's goals are
to raise awareness about the health needs of Asian American, support
Asian American through leadership development and advocacy, and
strengthen systems serving Asian Americans. NAWHO is widely recognized
for its ability to gain broad support for initiatives that impact
Asian Americans and other communities of color.
National Association for Home Care and Hospice
www.nahc.org
This association provides an online guide on how to choose a home
care agency. Its website also lists resources by state.
National Council on the Aging (NCOA)
www.ncoa.org
NCOA is a nonprofit group offering information on elderly issues
including Social Security, Medicare, and housing.
National Family Caregivers Association (NCFA)
www.thefamilycaregiver.org/
The NFCA is a national, charitable organization dedicated to making
life better for all of America's family caregivers. With the increasing
number of family caregivers in the nation, NFCA focuses their efforts
on addressing the special concerns of the caregiving population.
National Foundation of Dentistry for the Handicapped (NFDH)
www.nfdh.org
Through the main program of NFDH, disabled, elderly, and medically compromised patients are linked with dentists in their communities to receive free comprehensive dental treatment, including prosthetics.
National Hispanic Council on Aging (NHCOA)
www.nhcoa.org
NHCOA is dedicated to improving the quality of life for Latino
elderly, families, and communities through advocacy, capacity and
institution building, development of educational materials, technical
assistance, demonstration projects, policy analysis and research.
National Institute on Aging (NIA)
www.nia.nih.gov
The NIA is the component of the National Institutes of Health
devoted to improving the health of older people. Their site offers
valuable health information for the general public and health professionals.
It has consumer-oriented information on a wide range of topics
important to older people and their families.
National Organization for Empowering Caregivers
www.nofec.org
This nonprofit organization dedicated to providing assistance,
education, support and referrals for informal family caregivers
hosts two helpful websites.
New Jersey Chapter, American Association of Retired Persons
www.aarp.org/states/nj
At the NJ state office, AARP members can find general information
on the organization, community referrals, and information on the
AARP Tax-Aide, 55 ALIVE, and Public Benefits Outreach programs.
NJ Department of Health and Senior Services' Resources
on the Internet
www.state.nj.us/health/healthfacilities/guide/index.shtml
List of Internet resources made available as part of the Division
of Health Facilities Evaluation and Licensing's "Selecting a Long Term Care Setting:
A Guide for New Jersey Consumers."
NJ Department of Human Services (NJDHS)
www.state.nj.us/humanservices
NJDHS encompasses the Division of Youth and Family Services, the
Commission for the Blind and Visually Impaired, the Division of
the Deaf and Hard of earing, the Division of Mental Health Services,
the Division of Medical Assistance & Health Services (the Division
that administers Medicaid), and the Division of Developmental Disabilities.
New Jersey Hospital Association (NJHA)
www.njha.com
NJHA is a trade group representing most of the state's hospitals
and health systems, providing its members with advocacy, education,
research, information and policy development. On this site, useful
consumer information is available about healthcare and hospitals
throughout New Jersey. There are also selected resources prepared
by the NJHA Library as an informational service.
New Jersey Housing and Mortgage Finance Agency
www.state.nj.us/dca/hmfa
As part of the NJ Division of Consumer Affairs, HMFA is dedicated
to increasing housing opportunities for New Jersey families. Their
website has information on useful programs, activities, products
and services that can enhance housing and community development
throughout the state.
Pharmacy Checker.Com
www.pharmacychecker.com
This site collects, evaluates, and reports credentials, prices,
and customer feedback regarding online pharmacies. You can compare
prices of products offered by online pharmacies. It rates online
pharmacies, determines if they are licensed or not, and if the sites
maintain security of your financial and personal information. For
example, this organization determined that 50% of online pharmacies
are not licensed. To obtain this information you must subscribe
to PharmacyChecker.com at $24.95/year.
SeniorCare Pharmacist
www.seniorcarepharmacist.com
The challenges of managing medications can sometimes be overwhelming
for seniors. This site is a resource for seniors and anyone who
cares for seniors.
Social Security Administration (SSA)
www.ssa.gov
The SSA website includes an index to program benefit information,
an online edition of the U.S. Social Security Handbook on Benefits
and Policies, Medicare rates, a policy forum containing reports
to Congress, SSA's Annual Report to Congress, a statistical database
about Social Security, and legislation affecting Social Security.
Links to other government agencies with information related to Social
Security are provided.
Strength for Caring
www.strengthforcaring.com
This website, a not-for-profit offering from Johnson & Johnson, has a number of resources for caregivers including tips on daily care, housing and money and insurance.
Suite 101
www.suite101.com.
Type "caregiving"
into the search window. This site provides information, decision-making
aids, products and a chatroom for families and trained staff. It
can also supply users with numerous resources on a variety of services
available in their community. Up-to-date articles and reports, a
glossary of terms used in the long term care industry, and a retail
store make this website a good resource.
State and Local Government on the Net
www.statelocalgov.net/index.cfm
A resource guide to government sponsored Internet sites.
State of New Jersey
www.state.nj.us
The official home page of NJ includes features such as the Governor's
Office, consumer publications, state government departments, directories,
and other useful information throughout New Jersey.
Visiting Nurses Association of America
www.vnaa.org
Provides information about the nearest visiting nurse agency in
their area. Visiting Nurse Association services include: nursing,
physical, occupational, and speech therapy, medical social services,
high-tech home interventions, case management, personal care, adult
day care, respite care, hospice, nutritional counseling and meals
on wheels.
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Disease Related Links
ALS Association
www.alsa.org
Provides information and educational materials about ALS (Lou
Gehrig's Disease). Provide referrals to physicians, support groups,
and drug trials.
Alzheimer's Association
www.alz.org
The Alzheimer's Association provides information for caregivers,
including how to contact local chapters, and programs such as Safe
Return. It provides links to local Chapters, and access to public
policy and other Association materials including Congressional
testimony, press statements, updates on Federal legislative actions,
as well as resources to learn more about medical advances and research
regarding Alzheimer's Disease.
Alzheimer's Disease Education and Referral Center
(ADEAR)
www.alzheimers.org/
ADEAR provides information and referral, publications, a database,
and resources about Alzheimer's disease and related disorders,
and is a service of the National Institute on Aging.
American Association of Retired Persons (AARP)
www.aarp.org
Provides a wide range of services including counseling, advocacy,
benefits, and entitlement information; activities and assistance
to people who are homebound.
American Brain Tumor Association
www.abta.org
The American Brain Tumor Association is a national non-profit
organization which seeks to meet the needs of persons with brain
tumors and their families. The website has both educational and
advocacy related material related to brain tumors.
American Chronic Pain Association
www.theacpa.org
Provides peer support and coping skills to anyone with chronic
pain.
American Hospice Foundation
www.americanhospice.org
The foundation advances the hospice concept of care and promotes
hospices that seek to meet growing and complex needs.
American Pain Foundation
www.painfoundation.org
An information, education, and advocacy organization serving
people with pain. They will accept telephone calls from individuals
with specific pain issues. Leave a message on the answering service
and they will call back.
American Society on Aging
www.asaging.org
Provides education and training resources for professionals working
in the field of aging.
Americans For Better Care of the Dying (ABCD)
www.abcd-caring.org
ABCD is dedicated to ensuring that all Americans can count on
good end of life care. Their goals are to build momentum for reform,
explore new methods and systems for delivering care, and shape
public policy through evidence-based understanding.
Arthritis Foundation
www.arthritis.org
This site provides information about the Arthritis Foundation
and its local chapters, a list of answers to frequently asked questions
about arthritis, and instructions on ordering additional information.
Cancer Care, Inc.
www.cancercare.org
Provides support groups, educational programs and workshops for
cancer patients and their families. They operate a national referral
service, and counselors on staff provide assistance to callers.
Cancer Care also publishes and has on-line Helping Hand, a useful
resource guide for cancer patients and others. Includes resource
information for caregivers.
Cancer On Line
http://www.cancer.org/docroot/home/index.asp
Excellent resources for patients and their loved one related
to cancer and pain management.
Dying Well
www.dyingwell.org
This is the site of Dr. Ira Byock, a well-known hospice physician
who has worked actively to improve care for the terminally ill in
the US. Dr. Byock has also written extensively on the subject, and
at this site you can access some of his publications as well as
other resources for patients and families.
Funeral Consumers Alliance
www.funerals.org
An excellent site for information about after death planning.
A consumer rights organization providing a referral service, information
on industry practices and the law, as well as other useful information.
Provides help in planning a dignified and affordable funeral. Offers
referrals to memorial service providers nationwide.
Genetic Alliance
www.geneticalliance.org
An international coalition of individuals, professionals and genetic
support organizations working together to enhance the lives of everyone
impacted by genetic conditions. Information on support groups.
Hospice Foundation of America:
www.hospicefoundation.org
This not-for-profit organization provides leadership in the development
and application of hospice and its philosophy of care. Through programs
of professional development, research, public education and information,
HFA assists those who cope either personally or professionally with
terminal illness, death, and the process of grief.
Hospice Net
www.hospicenet.org
This site has information for patients and families facing a life-threatening
illness.
Last Acts
www.lastacts.org/
Last Acts was a national coalition of an organization engaged in
an education campaign to improve care for people who are dying and
their families. It is a clearinghouse for sharing information and
ideas at the national, state and local levels.
Leukemia and Lymphoma Society
www.lls.org
Leukemia, Hodgkin and non-Hodgkin lymphoma, myeloma and myelodysplastic syndromes are cancers that originate in the bone marrow or lymphatic tissues. This site provides information on the Leukemia and Lymphoma Society, its local chapters and services.
Mayday Pain Project
www.painandhealth.org
This website provides a guide and index of internet information
to those in pain. This site is targeted to care givers, family and
friends of those suffering from pain.
Medicare Rights Center
www.medicarerights.org
Provides telephone hotline services to people with Medicare questions
or problems. Provide education materials about Medicare benefits
and rights.
Memorial Sloan-Kettering Cancer Center
www.mskcc.org
This website provides descriptions of programs, research, facilities,
education opportunities, etc., in addition to helping patients and
caregivers access care.
National Cancer Institute
www.cancer.gov
Answers questions related to cancer and cancer treatment. Provides
referrals to hospice, home care and support groups.
National Institutes of Health
www.nih.gov/
This site provides a calendar of events, press releases, information
about health resources and a catalog of diseases under investigation
at NIH. Information about research grants and how to apply for them
are offered as well as links to some of its institutes. Institutes
which may be of special interest to seniors include the: National
Cancer Institute, National Institute of Mental Health, National
Eye Institute, and National Institute of Diabetes and Digestive
and Kidney Diseases. Each site provides consumer health information.
National Library of Medicine
www.nlm.nih.gov
This is the site for the U.S. National Library of Medicine. It
has a link to MEDLINE and MEDLINEplus for health information.
National Osteoporosis Foundation
www.nof.org
NOF focuses on fighting osteoporosis and promoting bone health
through increasing public awareness and knowledge about osteoporosis,
providing education and training programs for health professionals,
advocating for an expanded medical research efforts, and providing
information and services to patients and their families.
National Parkinson Foundation
www.parkinson.org
The Parkinson Foundation supports advancements in the fight against
Parkinson's Disease made by researchers; physicians; occupational,
physical and speech therapists; and psychological counseling. It
also provides educational and medical information for Parkinson
patients, their families, neurologists and general medical practitioners.
National Resource Center on Aging and Injury
www.safeaging.org/
This Resource Center's site promotes safe and healthy aging by
providing its visitors with journal articles, a bulletin board,
publications, video and web sources on injury prevention. There
are plans to post fact sheets and tutorials.
The Huntington's Disease Society of America (HDSA)
www.hdsa.org
The Huntington's Disease Society of America is dedicated to finding
a cure for Huntington's Disease (HD) while providing support and
services for those living with HD and their families.HDSA promotes
and supports both clinical and basic HD research, aids families
in coping, and educates families and health care professionals about
HD.
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