Palliative and End of Life Care

Select textsizemediumlargelarger

Discuss, Prepare, Choose

How to Talk End-of-Life Care with a Dying Patient - Atul Gawande

Far too many people wait until they are in the midst of a health care crisis before thinking about what options are available or what care they or their loved ones would want. A recent survey, conducted by the Conversation Project, reported that more than 9 in 10 Americans think it is important to discuss their wishes for end-of-life care, however only 3 in 10 have actually had these discussions. And while these discussions usually center around serious issues at the end of life, it's never too early for any of us - young or old, healthy or not - to plan and prepare for our future healthcare decisions.

Empowering Patients In End-of-Life Care Decision Making By Mary E.O'Dowd and Betsy Ryan. November 25, 2013

  • Coalition to Transform Advance Care
    C-TAC is a national, non-profit, non-partisan alliance of patient and consumer advocacy groups, health care professionals and providers, private sector stakeholders, faith-based organizations, and health care payers with the shared vision that all Americans with advanced illness, especially the sickest and most vulnerable, will receive comprehensive, high-quality, person- and family-centered care that is consistent with their goals and values and honors their dignity.

  • Educational Video: Dealing with Dying - National Healthcare Decisions Day
    New Jersey Hospice & Palliative Care Organization, New Jersey Health Care Quality Institute, New Jersey Hospital Association and New Jersey State Bar Association

  • The Conversation Project - See more at

    It's not easy to talk about how you want the end of your life to be. But it's one of the most important conversations you can have with your loved ones. This Starter Kit will help you get your thoughts together and then have the conversation.

  • Where to Find My Important Papers Worksheet

  • Choosing Wisely - An initiative of the ABIM Foundation See more at

    United States specialty societies representing more than 500,000 physicians developed lists of Five Things Physicians and Patients Should Question in recognition of the importance of physician and patient conversations to improve care and eliminate unnecessary tests and procedures. These lists represent specific, evidence-based recommendations physicians and patients should discuss to help make wise decisions about the most appropriate care based on their individual situation. Each list provides information on when tests and procedures may be appropriate, as well as the methodology used in its creation.

  • Serious Illness Communication Projects

    The purpose of the study is to evaluate the impact of implementing a "Serious Illness Communication Checklist" to guide patient/family-clinician discussions and planning about end-of-life care decisions. The goal of the intervention is to improve achievement of patient care priorities and peacefulness at the end of life for patients with serious and life-threatening illness and their families. We hypothesize that patients whose physician is trained to use and adheres to the elements of the Serious Illness Communication Checklist will demonstrate enhanced consistency between documented key priorities and care received, and will experience greater peace in the final month of life; similarly, their families will experience higher satisfaction with care.

    Serious Illness Communication Checklist. Rachelle E. Bernacki MD, MS, and Susan D. Block, MD. (Virtual Mentor. December 2013, Volume 15, Number 12: 1045-1049.)

    The goal of the Serious Illness Communication Checklist is to improve care for patients with serious illnesses and their families by facilitating and documenting discussions about end-of-life issues at the right time in the right way.