The ALS Surveillance Project has received several letters of support, including letters from ATSDR [pdf 250k] and the national office of the ALS Association (ALSA) [pdf 70k]. Many New Jersey residents with ALS seek information and services through two local chapters of ALSA: the Greater New York Chapter and the Greater Philadelphia Chapter. Both chapters provided letters of support for the project: Greater New York Chapter [pdf 564k] and Greater Philadelphia Chapter [pdf 604k]. In addition, the project has been well-received and many neurologists have expressed their support, interest, and willingness to participate in the project.
There are many components to the ALS Surveillance Project outreach and
promotion plan. The highlights include: the development and distribution of several promotional pieces, including a post card [pdf 869k], a brochure [pdf 1m], a one-page primer [pdf 515k], and a PowerPoint presentation [pdf 105k].
Neurologists in New Jersey, New York, Philadelphia, and Delaware who may see ALS patients received an introductory letter [pdf 169k] from the New Jersey’s State Epidemiologist and will be phoned about the project.
The project team continues to attend conferences and meetings to promote the project.
The project team is available to conduct face-to-face meetings with neurologists and their office staff to promote the project and recruit them to participate as reporting providers.