Welcome to the Autism Registry website. The Autism Registry was created in 2007 when the legislature unanimously passed a bill and then Governor Corzine signed the legislation. The law requires all New Jersey licensed health care providers to report any child diagnosed with autism to the Autism Registry. A child has to be:
- A resident of New Jersey
- Under the age of 22 and
- Have one of these diagnoses:
- Autistic Disorder;
- Asperger’s Syndrome,
- Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS),
- Rett’s Disorder, or
- Childhood Disintegrative Disorder (CDD).
The primary purpose of the Autism Registry is to link families to special child health case management services, which are county based coordinated service providers that have many years of experience and knowledge of local, county, and statewide resources available to families of children with special health care needs.
In 2009, the Autism Registry went electronic so that birthing hospitals, child evaluation centers, and autism centers could register a child through a confidential and private web-based network. Stand-alone pediatric offices and other office-based providers such as psychologists, psychiatrists, etc. do not currently have access to the electronic system, but can register by completing the paper version of the registration forms (the SCH-0 and the SCH-1 forms) and mailing them to the New Jersey Department of Health, Division of Family Health Services, Special Child Health & Early Intervention Services, PO Box 364, Trenton, NJ 08625-0364.
For more information about who should register and how to register, please click on the information for "Health Care Providers" tab on the left.
For information on the benefits of registering your child with the Autism Registry as well as resources available to parents and/or guardians in New Jersey, please click the "Parents/Guardians" tab on your left.
In addition to linking families to services, another goal of the Autism Registry is to obtain counts of children with autism in New Jersey and to describe the population in terms of demographics, diagnosis type and other characteristics so that we can plan for future services and policies. A number of issue briefs have been developed related to autism in New Jersey and the Autism Registry. These briefs can be found under the "Information & Resources" tab to your left. We have also included links to other research and data on autism that is available on the web.