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Other Related Resources for Families of Children with Special Health Care Needs

New Jersey Self Help Clearinghouse
Northwest Covenant Medical Center
1-800-FOR-MASH (Mutual Aids Self Help)
TTY (201)625-9053 / Outside NJ (201)625-9565

Lists mutual aid self help groups that are composed of peers (i.e., people who share a similar experience or situation; groups are primarily run by and for its members who have a sense of ownership of the group; and the group is voluntary and non-profit in that there are no fees for services, although the group may charge dues or request donations. General headings of groups identified include Abuse; Addictions/ Dependencies; Bereavement; Disabilities; Health (primarily diagnostic categories or disorders); Mental Health; Parenting/Family; and others.

Statewide Parent Advocacy Network, Inc. (SPAN)

35 Halsey St.
Newark, NJ 07102

SPAN strives to provide the best support and training to families and professionals who need assistance and keep people informed about important events in education, health care, and all the other areas of life that impact on families of children with special health care needs and the professionals who work with them.

SPAN in partnership with the Department of Health conducts the following family support activities through Family WRAP (Wisdom, Resources, Advocacy and Parent to Parent):
    1. One on one family support through Project Care
    2. Family Voices New Jersey
    3. Parent to Parent

Parent to Parent is a telephone support program. If you are interested in volunteering to be a support parent or are looking for support, you may contact SPAN directly.

Family Voices New Jersey, a chapter of the national organization described below provides families with information and advocacy. You may contact your state chapter by SPAN.

Family Voices
PO Box 769
Algodones, NM 87001
FAX (505)867-6517

A national grass roots network of families and friends speaking on behalf of children with special health care needs. Family Voices distributes a newsletter that identifies federal issues and directions related to children with special health care needs and resources for families. Annual cost for the newsletter is $25.

The Medicaid Clearinghouse

Find out the latest on state and federal Medicaid law, regulations, changes and Medicaid related sources.

Catastrophic Illness In Children Relief Fund

Financial help is available from this fund if your child is 18 years old or younger when the medical bills were incurred; the expenses for your child not covered by insurance or state/federal program exceeded 10% of annual family income plus 15% of any income over $100,000; and, your family has lived in New Jersey at least 3 months prior to application. Note: The Fund covers expenses dating back to 1988. Call the Fund or contact the county based case management unit in your county.

Federation For Children With Special Needs:

This website is for families of children with special needs to keep them informed of their rights in the areas of education, healthcare and many other topics of concern.

New Jersey Family Centered HIV Care Network:

This website is dedicated to providing state of the art information regarding clinical care, research findings, and available investigational drug protocols. It is an opportunity to share information with the public and community based organizations regarding training opportunities, special events and activities, and links to other relevant websites. The website serves to increase the visibility of the Network, and to facilitate access to services and information throughout the State.

Department of Health

P. O. Box 360, Trenton, NJ 08625-0360
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Last Modified: Thursday, 12-Jul-12 14:56:37