The Cancer Surveillance Research Program (CSRP) at Cancer Epidemiology Services (CES) encourages research use of New Jersey State Cancer Registry (NJSCR) data for the purpose of determining the incidence and etiology of malignant neoplasms and/or evaluating measures designed to eliminate, alleviate, or reduce the impact of cancer. CSRP collaborates with many researchers to facilitate cancer research using the NJSCR. If you are a researcher interested in conducting an epidemiologic study using NJSCR data, please contact us for more information, and prior to submitting an Institutional Review Board (IRB) request.

• Reports of aggregated data stratified by non-confidential data fields (i.e., case counts by race, sex, stage, age, county, etc.)
• Many statistics can be obtained quickly at the following websites:
           NJ Interactive Cancer Data Map
           State Cancer Profiles (NCI)
           Cancer Data & Statistics Tools (CDC)
           SEER limited use data (see right toolbar)
           SEER*Explorer
           National Childhood Cancer Registry NCCCR*Explorer
           NJ State Health Assessment Data (NJSHAD)
           Cancer In North America (NAACCR)
           Cancer Facts & Figures (ACS)
           Cancer Stat Facts (NCI/SEER)
           US Cancer Incidence & Mortality Data (CDC's NPCR)
           Environmental Public Health Tracking Network (CDC)
• If you can’t find what you need, please submit a request form for Level A: Aggregate data. Please be specific in your request.

• Individual record level data required for linkage studies or data analysis that DOES NOT involve patient or family contact 
• Are you interested in national data linkages or linkages involving more than one cancer registry?  Visit for more information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS)

• Individual record level data required for research that DOES involve patient or family contact 
• First contact of the patient MUST be made by NJSCR staff

• NJSCR data are provided only to researchers with studies that meet stringent requirements for scientific merit and handling of confidential information.
• Please plan ahead to allow adequate time for the approval process.  Due to the high volume of requests and staffing shortage, please allow 6-9 months for the approval process.
• Contact us first to discuss your study.  We will review your protocol to make sure that your scientific question can be answered using NJSCR data.
• A cost estimate will be provided.
• Each study will need the following approvals before the data are released:
  1. CSRP Approval
  2. Approval from Rutgers Cancer Institute Scientific Board (SRB)
  3. Approval from Rutgers Cancer Institute Institutional Review Board (IRB)
  4. Signed Contract/Data Use Agreement with budget