Cancer

"Making a difference together"

The Cancer Surveillance Research Program (CSRP) at Cancer Epidemiology Services (CES) encourages research use of New Jersey State Cancer Registry (NJSCR) data for the purpose of determining the incidence and etiology of malignant neoplasms and/or evaluating measures designed to eliminate, alleviate, or reduce the impact of cancer. CSRP collaborates with many researchers to facilitate cancer research using the NJSCR. If you are a researcher interested in conducting an epidemiologic study using NJSCR data, please contact us for more information, and prior to submitting an Institutional Review Board (IRB) request.

There are two levels of patient data that can be released for cancer surveillance and research purposes, aggregate data and individual data.

• Reports of aggregated data stratified by non-confidential data fields (i.e., case counts by race, sex, stage, age, county, etc.)
• Many statistics can be obtained quickly at the following websites:
• NJ Interactive Cancer Data Map
• State Cancer Profiles (NCI)
• Cancer Data & Statistics Tools (CDC)
• SEER limited use datasets 
• SEER*Explorer
• National Childhood Cancer Registry NCCCR*Explorer
• NJ State Health Assessment Data (NJSHAD)
• Cancer In North America (NAACCR)
• Cancer Facts & Figures (ACS)
• Cancer Stat Facts (NCI/SEER)
• US Cancer Incidence & Mortality Data (CDC's NPCR)
• National Environmental Public Health Tracking Network (CDC)
• If you can’t find what you need, please submit a request form for Level A: Aggregate data. Please be specific in your request.

• Individual record level data required for research or linkage studies
• DOES NOT involve patient or family contact 
• Data are provided only to researchers with studies that meet stringent requirements for scientific merit and handling of confidential information.
   
  Step 1: Contact us first to discuss your study.  We will first review your protocol.  Then, we will assist you with the following approvals that you will need before the data are released:

1. CSRP Approval
2. Approval from Rutgers Cancer Institute of NJ Scientific Review Board (SRB) (Attendance by PI or study team designee at a Rutgers Cancer Institute of NJ SRB meeting, is required to obtain approval)
3. Approval from Rutgers Cancer Institute of NJ Institutional Review Board (IRB)

• Please plan ahead to allow adequate time for the approval process.
• There may be a charge for this service.

• Individual record level data required for research
• DOES involve patient or family contact 
• Data are provided only to researchers with studies that meet stringent requirements for scientific merit and handling of confidential information
   
  Step 1:  Contact us first to discuss your study.  We will first review your protocol.  Then, we will assist you with the following approvals that you will need before the data are released:

1. CSRP Approval
2. Approval from Rutgers Cancer Institute of NJ Scientific Review Board (SRB) (Attendance by PI or study team designee at a Rutgers Cancer Institute of NJ SRB meeting, is required to obtain approval)
3. Approval from Rutgers Cancer Institute of NJ Institutional Review Board (IRB)
4. Approved Contract/Agreement with budget

• First contact of the patient or family will be made by the Cancer Research Program
• Please plan ahead to allow adequate time for the approval process