The Cancer Surveillance Research Program (CSRP) at Cancer Epidemiology Services (CES) encourages research use of New Jersey State Cancer Registry (NJSCR) data for the purpose of determining the incidence and etiology of malignant neoplasms and/or evaluating measures designed to eliminate, alleviate, or reduce the impact of cancer. CSRP collaborates with many researchers to facilitate cancer research using the NJSCR. If you are a researcher interested in conducting an epidemiologic study using NJSCR data, please contact us for more information, and prior to submitting an Institutional Review Board (IRB) request.
Accessing NJSCR Data
There are two levels of patient data that can be released for cancer surveillance and research purposes, aggregate data and individual data.
Level A: Aggregate Data
Reports of aggregated data stratified by non-confidential data fields (i.e., case counts by race, sex, stage, age, county, etc.)
Many statistics can be obtained quickly at the following websites:
If you can’t find what you need, please submit a request form for Level A: Aggregate data. Please be specific in your request.
Level B: Individual level data without patient contact
Individual record level data required for research or linkage studies
DOES NOT involve patient or family contact
Data are provided only to researchers with studies that meet stringent requirements for scientific merit and handling of confidential information.
Step 1: Contact us first to discuss your study. We will first review your protocol. Then, we will assist you with the following approvals that you will need before the data are released:
CSRP Approval
Approval from Rutgers Cancer Institute of NJ Scientific Review Board (SRB) (Attendance by PI or study team designee at a Rutgers Cancer Institute of NJ SRB meeting, is required to obtain approval)
Approval from Rutgers Cancer Institute of NJ Institutional Review Board (IRB)
Please plan ahead to allow adequate time for the approval process.
There may be a charge for this service.
Level C: Individual level data with patient contact
Individual record level data required for research
DOES involve patient or family contact
Data are provided only to researchers with studies that meet stringent requirements for scientific merit and handling of confidential information
Step 1: Contact us first to discuss your study. We will first review your protocol. Then, we will assist you with the following approvals that you will need before the data are released:
CSRP Approval
Approval from Rutgers Cancer Institute of NJ Scientific Review Board (SRB) (Attendance by PI or study team designee at a Rutgers Cancer Institute of NJ SRB meeting, is required to obtain approval)
Approval from Rutgers Cancer Institute of NJ Institutional Review Board (IRB)
Approved Contract/Agreement with budget
First contact of the patient or family will be made by the Cancer Research Program
Please plan ahead to allow adequate time for the approval process
Special Studies and Publications
In addition to research published by Cancer Epidemiology Services, the Cancer Surveillance Research Program has used NJSCR data to facilitate a variety of publicly and privately funded studies in New Jersey and across the United States.