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Inherited Diseases

About Cystic Fibrosis

Cystic fibrosis (CF) is an inherited disease characterized by the buildup of thick, sticky mucus that can damage many of the body's organs. CF is the most common life limiting, recessive genetic disorder in Caucasians with an incidence of 1 in 3,200 newborns in the U.S. It is less common in African and Asian Americans. Learn more about CF from the National Institutes of Health.

Cystic Fibrosis [National Institutes of Health]

Newborn Screening for Cystic Fibrosis

Cystic fibrosis is one of 55 congenital disorders for which New Jersey screens newborn children, usually before they go home from the hospital.

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Cystic Fibrosis

Services for New Jersey children with cystic fibrosis are available through the Family Centered Care Services (FCCS) program.

Services for Adults with Cystic Fibrosis

State-funded services for adults living with cystic fibrosis are provided through the New Jersey State Organization of Cystic Fibrosis.

NJSOCF addresses needs from assistance purchasing prescription medications, medical equipment and supplies, oxygen, home IV’s, reimbursement for insurance deductibles, nutritious foods, vitamins and supplements for weight gain, to referrals to clinics, prescription assistance programs, and any other issues that may arise.

Fifteen percent of NJSOCF clients have undergone lung transplant surgery. The program assists them with expenses related to this life-saving procedure.

To apply for services through NJSOCF, call (973) 595-1232 or visit the NJSOCF website.

Last Reviewed: 3/23/2017